genetic information (Florida)

In general, Florida statutes permit genetic analysis "only with the informed consent of the person to be tested." Exceptions to this general rule include: criminal prosecution, determining paternity, or acquiring specimens from persons convicted of certain offenses. (FL Stat 760.40)

The results of genetic analyses, "whether held by a public or private entity," are "the exclusive property of the person tested, are confidential, and may not be disclosed without the consent of the person tested." Genetic information held by a public entity is also exempt from public records disclosure provisions (760.40)

Any person who performs genetic analyses or receives records, results, or findings of such, must provide the person tested with notice that the analysis was performed or that the information was received. The notice must also state whether the information was used in any decision (e.g., "to grant or deny insurance, employment, mortgage, loan, credit, or educational opportunity"). If the information was used in any decision that resulted in a denial, the analysis must be repeated to verify the accuracy of the first analysis. If the first analysis is found to be inaccurate, the denial must be reviewed. (760.40)

Health insurers may not require or solicit genetic information, use genetic test results, or consider a person's decisions or actions relating to genetic testing in any manner for any insurance purpose. In the absence of a diagnosis of a condition related to genetic information, a health insurer may not cancel, limit, or deny coverage, or establish differentials in premium rates, based on such information. Most other kinds of personal insurance, such as life and disability, are not subject to this limitation. (627.4301)

These provisions exceed the privacy protections of HIPAA (which currently gives no specific additional attention to genetic information), and so are not preempted.

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   © 2002-2006 Contributing authors and University of Miami School of Medicine