personal representative (HIPAA)

Though the exact terminology may vary, all states' laws permit the designation of a "personal representative" to make heath care decisions on another person's behalf, when the latter is incapable of so doing.

Sometimes this selection will be based on an explicitly-executed document, such as a durable power of attorney for health care. Sometimes the designation derives simply from the relationship between the representative and the patient -- e.g., a spousal or filial relationship.

For adults and "emancipated minors," HIPAA's rules are fairly straightforward: if a person other than the patient has the legal right to make a health care decision, for whatever reason, that person also has a right to make decisions about the protected health information (PHI) associated with the decision.

DHHS has noted that the personal representative in such circumstances "stands in the shoes" of the patient, and thus has all the rights that HIPAA provided with respect to the individual's PHI -- for access, accounting for and authorizations of disclosures, special protections, and so on.

Where the authority to act for an individual is limited or specific to particular health care decisions, the personal representative is treated as the individual only with respect to PHI that is relevant to those decisions -- e.g., a decision to discontinue life-support.

For "unemancipated minors," HIPAA begins with the same straightforward rule, but adds a number of other considerations -- see minors, privacy rights of (HIPAA) in this glossary.

An executor, administrator or other person who has the right to act on behalf of a deceased person (or that individual's estate) is considered a personal representative under HIPAA.

See also:

Last modified: 12-May-2005 [RC]

 
 

   © 2002-2006 Contributing authors and University of Miami School of Medicine